TikTok For A Cure - Kickoff from @Love_Logan07

"Sanfilippo parents of TikTok" are uniting to honor their beautiful children by trying to raise $1 million in one month to advance research and clinical trials for Sanfilippo Syndrome.

They can’t do it alone. They need your help.

Not only would this make TikTok history, it would get the world closer to an effective treatment … and eventually a cure for Sanfilippo.

Maybe you follow one of the amazing Sanfilippo families on TikTok. Help us reach the goal. To honor children like Logan, Haidyn, Carter, and so many others.

Please donate. Please share on all your social media accounts. Include the hashtag #tiktokforacure so we can see the wide-reaching impact.

All funding goes to Cure Sanfilippo Foundation, the nation’s largest nonprofit dedicated to getting an approved therapy for Sanfilippo Syndrome. Your support of the Foundation funds research for all types of Sanfilippo and supports treatment approaches such as gene therapy, enzyme replacement, stem cell therapy, reduction of inflammation, and testing FDA-approved drugs for use in Sanfilippo. Some of these could benefit all kids with Sanfilippo, no matter their disease subtype (A, B, C, or D), age, or disease progression.

In a rare disease like Sanfilippo Syndrome, it is often the parents and patient advocacy groups who are left to fund the research. Large biotech companies don’t see a profit potential. It is unfortunate, but that’s the reality.

Parents are stepping up to spread awareness and fundraise for critical, life-saving research. Every donation, big or small, helps us reach our goal. Time is critical for these children. Every moment Sanfilippo is damaging the brains and bodies of these beautiful children, taking away their skills and abilities.

Donate: http://www.TikTokForACure.com

Видео TikTok For A Cure - Kickoff from @Love_Logan07 канала Cure Sanfilippo Foundation