A patient perspective | Tilly Hale | TEDxNewcastle

This talk was given at a local TEDx event, produced independently of the TED Conferences. The patient whose illness launched her
research career. A patient perspective on research.

A joint Thinking Digital Production with Newcastle University. Sponsored by Newcastle University and supported by Newcastle Science City.

For many years Tilly suffered from undiagnosed biliary cirrhosis. She was chronically tired, and largely fobbed off by medics because her blood tests were normal. Though she was diagnosed in 1986 there was no cure for this exhausting, debilitating condition and, crucially, there was no support either. In 1994 she became a founder member of LIVErNORTH, a liver patients support group based at the Freeman Hospital in Newcastle upon Tyne. She continues to champion the patient perspective and in 2012 the British Medical Journal accepted "A Patient's Journey, Fatigue in primary biliary cirrhosis" for publication -- a journal article written in collaboration with researchers at Newcastle University.

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