Living With Pompe Disease – Shaylee’s Story

Shaylee isn’t your average seventeen-year-old and it’s not just the fact that she has Pompe disease, a rare, neuromuscular genetic disorder, which sets her apart. While Pompe disease causes muscle weakness and trouble breathing, it does not define what you can do. Shaylee remains very active in her community and continues to participate in many of her hobbies! Shaylee is greater than her rare diagnosis. Shaylee is #GreaterThanPompe.

To learn more about Pompe disease, visit: www.Pompe.com

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Видео Living With Pompe Disease – Shaylee’s Story канала Sanofi Genzyme