Living with an Unknown Genetic Syndrome (The Only Discovered Case)
Evely lives with an unknown genetic condition. At four years old she is unable to walk or talk. The future is uncertain, but Evely’s big sister promises to protect her no matter what happens.
Follow Evely at https://www.instagram.com/thediazgirls
Evely's diagnoses include Bilateral anophthalia, congenital heart disease, microcephaly, hypotonia, abnormal brain waves, obstructive sleep apnea, Gastroesophageal reflux disease
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Видео Living with an Unknown Genetic Syndrome (The Only Discovered Case) канала Special Books by Special Kids
Follow Evely at https://www.instagram.com/thediazgirls
Evely's diagnoses include Bilateral anophthalia, congenital heart disease, microcephaly, hypotonia, abnormal brain waves, obstructive sleep apnea, Gastroesophageal reflux disease
Support SBSK at https://www.patreon.com/SBSK
SBSK Socials:
http://www.instagram.com/specialbooksbyspecialkids
https://twitter.com/chrisulmer
https://www.facebook.com/specialbooksbyspecialkids
https://www.reddit.com/r/sbsk
Видео Living with an Unknown Genetic Syndrome (The Only Discovered Case) канала Special Books by Special Kids
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15 ноября 2019 г. 4:23:20
00:10:07
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