Dr Christina Lampe, a specialist’s advice for families with MPSII

During her career, surgeon and rare disease specialist Dr Christina Lampe has worked to help diagnose children with Hunter syndrome – a rare genetic disorder that mainly affects boys.
In this interview, Dr Lampe explains exactly what Hunter syndrome is, and the key challenges facing families that live with hunter syndrome, from misdiagnosis to managing behavioural symptoms.
Dr Lampe explains that the most crucial advice for parents is to find a diagnosis. With this, you can find the appropriate specialist centre, inform yourself about the disease, and connect with other parents to understand how to manage a Hunter syndrome child.
For more information on Hunter syndrome, please visit http://www.huntersyndrome.info/
The resources mentioned and information found on this channel are not exhaustive, and are not intended to diagnose or advise about the treatment of any illness or disease. This information should not be used in place of advice from your general practitioner or other healthcare professional. If in doubt, please contact your doctor for advice.
To learn more from MPS II experts, and hear first-hand what life is like for families living with this rare disease, visit our channel at: https://www.youtube.com/user/HunterSyndromeInfo/videos
You can also find more information by referring to your local MPS society and the European Organisation for Rare Diseases.
C-ANPROM/INT/HUNS/0038 November 2020
Takeda Pharmaceutical Company Limited. All rights reserved.

Видео Dr Christina Lampe, a specialist’s advice for families with MPSII канала Hunter Syndrome