Dr Florian Lagler: a paediatrician’s advice for families with MPS II

Dr Florian Lagler, a paediatrician and pharmacologist based at Paracelsus Medical University in Salzburg, has treated patients with Fabry disease, Gaucher disease, Pompe disease, mucopolysaccharidoses (MPSs) and other lysosomal storage diseases (LSDs).
In this video, Dr Lagler shares some of the challenges faced by families along their journey to a rare disease diagnosis, along with his advice for parents of children with mucopolysaccharidosis type II (MPS II, also known as Hunter syndrome).
Hunter syndrome can affect any part of the body and causes a number of signs and symptoms. Many of the signs and symptoms are common childhood complaints, and it is the combination of them that may indicate Hunter syndrome. If you have any concerns, please speak to a physician about Hunter syndrome.
This interview is intended for a global audience (ex US, ex UK).
For more information on MPS II, please visit http://www.huntersyndrome.info/
The information found on this channel is not exhaustive, and is not intended to diagnose or advise in the treatment of any illness or disease. This information should not be used in place of advice from your general practitioner or other healthcare professional. If in doubt, please contact your doctor for advice.

You can also find more information by referring to your local MPS society and the European Organisation for Rare Diseases.

The views and clinical experiences shared in this video are those of the Speaker, and not necessarily those of the Sponsor.
C-ANPROM/INT/HUNS/0135 April 2021
Copyright 2021 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda Logo are trademarks of Takeda Pharmaceutical Company Limited.

Видео Dr Florian Lagler: a paediatrician’s advice for families with MPS II канала Hunter Syndrome