SMA Type 1, medically complex, rare disease/These parents share their son's journey with SMA.
"I remember his breathing, but I don't remember the other stuff." https://youtu.be/T6YYAV_PX3s
Parents of a little boy with SMA describe the last 11 days of his life and his death, including his struggle breathing and the decision to take him off the ventilator. All the preparation in the world doesn't prepare you for that moment. "We walked down the hall and said it's time." If your child has SMA Type 1 or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.
Видео SMA Type 1, medically complex, rare disease/These parents share their son's journey with SMA. канала Courageous Parents Network
Parents of a little boy with SMA describe the last 11 days of his life and his death, including his struggle breathing and the decision to take him off the ventilator. All the preparation in the world doesn't prepare you for that moment. "We walked down the hall and said it's time." If your child has SMA Type 1 or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.
Видео SMA Type 1, medically complex, rare disease/These parents share their son's journey with SMA. канала Courageous Parents Network
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17 августа 2016 г. 1:08:59
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