Living with NPC: Helen Carter

Helen Carter (NPUK Trustee & Hollie Foundation Founder), whose daughter Hollie has Niemann-Pick disease type C, speaks candidly about the impact of NP-C on her family, and how the service that NPUK offers has helped Hollie flourish:

"...NP-C has impacted our lives in unimaginable ways. From the day that we got the diagnosis our life changed completely; all our hopes and dreams for the future, everything we were going to do with Hollie, seeing her go to university, get married - all of those dreams were just out of the window and life became more of a ticking time bomb. So instead of waiting for her to hit those big milestones it was sort of 'let's get to the next stage, let's see what next week brings'..."

At NPUK we are a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. Our central goals are to raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies for NPD.

To learn more about Niemann-Pick UK (NPUK) and Niemann-Pick disease, please visit us at our site: http//www.npuk.org

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