My grand mal seizure - October 3, 2007

I've posted this in honor of my ignorant Bible-thumping coworker who believes seizures can sometimes be caused by demons.
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7/13/14 -- to all who have commented THANK YOU! A special thanks to those correcting misinformation on epilepsy and explaining the nurses are doing what they are supposed to do. Exactly. I've been unable to post to my own video, because I refuse to give away my location privacy. It's nobody's business where I am. Before I can post to MY OWN VIDEO I'm required to agree to this. Screw that! The new YouTube bites.
I'm testing toward another resection or deep brain stimulator, it depends upon the result of an intracranial depth probes test (similar to this, same setting, but EEG probes will be guided into place, 12 on the right and 3 on the left) I have next month. Still... There's hope. That's all I can ask for.
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I stopped comments for a long time because everyone was complaining about the nursing staff. I AM VERY PLEASED WITH THE WAY THE NURSES HANDLED THE SITUATION. If you wish to comment a complaint about the nurses, don't bother. It will only lead to my restricting comments again.

I'd remove the video altogether because I like the nurses so much, but I have had several people tell me things like:

"I never knew what mine looked like. Your video helped me understand."

"May I use your video in my PhD thesis?"

One woman even said to me: "None of the doctors believed me when I said my husband was having seizures. I showed them your video, because it is exactly what happens, and he's now been diagnosed with epilepsy."

The one man's diagnosis made the initial pain after surgery worth it. I'm sensitive to morphine, so my initial recovery was very painful. 10+ pain. There comes a point where pain can't get any worse.

This is a testing and recovery ward specifically set aside for people with epilepsy. I was on this ward for a total of one month during my treatment: three of these tests and recovery from three surgeries. I'm familiar with, and like, everyone in this video.

The first woman in the video is a sitter, not a nurse. She's an untrained person only there to alert the nurses to a seizure should I be unable to. It is required to have someone else in the room 24hrs a day during the test to alert the nurses should I have a problem.

This seizure ripped the shirt into shreds on the lower right side.
I remember thru 1:20 then the next thing I remember is 4:30.

May 2, 2007 - first surgery (right hippocampus removal and partial amygdala removal)
Dec 10, 2007 - second surgery (intracranial EEG grid placement)
Dec 17, 2007 - third surgery (grid removal, anterior right temporal lobectomy, and more of the amygdala scraped away)

I'm still having seizures. I'm on SSDI now. I qualified first try, no appeals. I recently (Jan 2014) began my 16th medication. My ACA coverage was fantastic! It paid for another of these tests in Jan 2014. Starting April 1st, I qualified for Medicare. I'm so glad to have health insurance. I wish I could have started Medicare beginning next year because I had met all my max out of pocket with the ACA plan (all of $1,500, deductibles and medication count toward it, too. Medication doesn't count toward the max with Medicare.) With the ACA plan all my medical would have been covered at 100% for the rest of the year so long as I paid my premium: A whopping $100/mo after subsidy. Still, no complaints. I have health coverage that will pay the majority and my medication is affordable with copays.

I do not regret my surgeries. I wish they had helped more. I recommend the surgery to anyone who qualifies. The FDA finally approved the RNS (Neuropace) unit. If we find these are coming from an area not removable, I still have an option. http://www.implantable-device.com/2011/12/21/neuropaces-responsive-neurostimulator-rns-for-the-treatment-of-epilepsy/

Видео My grand mal seizure - October 3, 2007 канала szrgirl