🏥 MY FIRST DOSE OF THE NEW VERTEX MEDICATION | THIS COULD BE LIFE CHANGING 💊
Vlog 8.2.19 - We've been looking forward to this day for years. I took the first dose of VX-445 Elexacaftor, a new Cystic Fibrosis treatment.
Visit our Online Store → http://thefreylife.com/store
Yesterday's Vlog → https://youtu.be/U10h48jhkPw
See what we were up to in years past! ↓↓↓
1 Year Ago →
2 Years Ago →
3 Years Ago →
4 Years Ago →
Subscribe to our channel → http://goo.gl/LvdRdF
→ We post new vlogs everyday showing daily life with #CysticFibrosis!
↓↓↓ Learn more about The Frey Life ↓↓↓
What is Cystic Fibrosis → https://youtu.be/llrxGuU5o5c
Draw My Life (the backstory) → https://youtu.be/jHYw-gQimws
Service Dog Q&A → https://youtu.be/5Nh1fS1N9NQ
Cystic Fibrosis Q&A → https://youtu.be/YDJ3yIS6SWI
Are We Having Kids? → https://youtu.be/uHjEcXvn2ZU
Peter is a pastor & posts weekly sermons on his channel here → https://youtube.com/livingwithhopepodcast
Want a personalized video message from Mary & Peter (and Ollie)?!? You can request a Cameo here! → https://www.cameo.com/freyliving
OUR CAMERAS (affiliate links) ↓↓↓
Canon G7X → http://amzn.to/1WhMLbn
Canon 70D → http://amzn.to/1VHJmEf
Mavic Pro Drone → http://amzn.to/2ixXL4W
Other affiliate deals for things we love! ↓↓↓
AirBnB ($40 off your first booking) → https://airbnb.com/c/pfrey2
Ibotta ($10 signup bonus) → https://ibotta.com/r/nfwkgca
Ebates ($10 signup bonus) → https://ebates.com/r/PETER378
Intro Music: "Breathe" by Ruby Amanfu
https://youtu.be/Uhe3zz2OZgc
FOLLOW US!
Mary's Instagram → http://instagram.com/freyliving
Peter's Instagram → http://instagram.com/peterfreylife
Our Store Instagram → http://instagram.com/thefreylife
Twitter → http://twitter.com/thefreylife
Google+ → http://google.com/+thefreylife
Facebook → http://facebook.com/thefreylife
Видео 🏥 MY FIRST DOSE OF THE NEW VERTEX MEDICATION | THIS COULD BE LIFE CHANGING 💊 канала The Frey Life
Visit our Online Store → http://thefreylife.com/store
Yesterday's Vlog → https://youtu.be/U10h48jhkPw
See what we were up to in years past! ↓↓↓
1 Year Ago →
2 Years Ago →
3 Years Ago →
4 Years Ago →
Subscribe to our channel → http://goo.gl/LvdRdF
→ We post new vlogs everyday showing daily life with #CysticFibrosis!
↓↓↓ Learn more about The Frey Life ↓↓↓
What is Cystic Fibrosis → https://youtu.be/llrxGuU5o5c
Draw My Life (the backstory) → https://youtu.be/jHYw-gQimws
Service Dog Q&A → https://youtu.be/5Nh1fS1N9NQ
Cystic Fibrosis Q&A → https://youtu.be/YDJ3yIS6SWI
Are We Having Kids? → https://youtu.be/uHjEcXvn2ZU
Peter is a pastor & posts weekly sermons on his channel here → https://youtube.com/livingwithhopepodcast
Want a personalized video message from Mary & Peter (and Ollie)?!? You can request a Cameo here! → https://www.cameo.com/freyliving
OUR CAMERAS (affiliate links) ↓↓↓
Canon G7X → http://amzn.to/1WhMLbn
Canon 70D → http://amzn.to/1VHJmEf
Mavic Pro Drone → http://amzn.to/2ixXL4W
Other affiliate deals for things we love! ↓↓↓
AirBnB ($40 off your first booking) → https://airbnb.com/c/pfrey2
Ibotta ($10 signup bonus) → https://ibotta.com/r/nfwkgca
Ebates ($10 signup bonus) → https://ebates.com/r/PETER378
Intro Music: "Breathe" by Ruby Amanfu
https://youtu.be/Uhe3zz2OZgc
FOLLOW US!
Mary's Instagram → http://instagram.com/freyliving
Peter's Instagram → http://instagram.com/peterfreylife
Our Store Instagram → http://instagram.com/thefreylife
Twitter → http://twitter.com/thefreylife
Google+ → http://google.com/+thefreylife
Facebook → http://facebook.com/thefreylife
Видео 🏥 MY FIRST DOSE OF THE NEW VERTEX MEDICATION | THIS COULD BE LIFE CHANGING 💊 канала The Frey Life
Показать
Комментарии отсутствуют
Информация о видео
Другие видео канала
![HUGE HEALTH INSURANCE COST INCREASE! 😬](https://i.ytimg.com/vi/6__QBUUsxyE/default.jpg)
![🏠 FIRST TIME INSIDE OUR NEW HOUSE | SURPRISING MY WIFE! 🏠](https://i.ytimg.com/vi/3EfvTnFvZjc/default.jpg)
![12 DAY UPDATE ON VERTEX TRIPLE COMBO MEDICATION! 🏥](https://i.ytimg.com/vi/r2K3lJWrJSY/default.jpg)
![FIRST CONVERSATION ABOUT LUNG TRANSPLANT (1.17.17)](https://i.ytimg.com/vi/gWWluV3K7OE/default.jpg)
![ON TRIKAFTA - DO I STILL NEED OTHER MEDICATIONS?](https://i.ytimg.com/vi/0NxgpR1GkGU/default.jpg)
![Getting my FIRST DOSE of the COVID-19 Vaccine!](https://i.ytimg.com/vi/QwpmIjKKhqM/default.jpg)
![EMOTIONAL INTERVIEW | My Cystic Fibrosis Journey](https://i.ytimg.com/vi/K0v_laoaAkA/default.jpg)
![ANTIBODY TEST RESULTS | DID WE HAVE COVID-19?](https://i.ytimg.com/vi/3E5n-cWz8WQ/default.jpg)
![WE GOT A HAIRLESS CAT!!! 😍](https://i.ytimg.com/vi/5-uNtA0coAA/default.jpg)
![🐬 SWIMMING WITH DOLPHINS | A DREAM COME TRUE! 🐬 (3.8.17)](https://i.ytimg.com/vi/H10kI9fyivU/default.jpg)
![SHE ALMOST PASSED OUT | LOW BLOOD SUGAR SCARE! 😱 (9.8.17)](https://i.ytimg.com/vi/d8X5GQkvhiM/default.jpg)
![THE MAIL TRUCK BLEW UP IN OUR FRONT YARD! 😱](https://i.ytimg.com/vi/JJX-ETXBr6A/default.jpg)
![Cystic Fibrosis Health Update | Visit with My Doctor 🏥](https://i.ytimg.com/vi/Jib0M82-1aM/default.jpg)
![CHRISTMAS DREAMS DO COME TRUE! 😂](https://i.ytimg.com/vi/BTap8kAHe64/default.jpg)
![ONE YEAR ON TRIKAFTA | TRIKAFTAVERSARY!](https://i.ytimg.com/vi/zozABIiFLTI/default.jpg)
![🚨 FOUR CAR COLLISION IN FRONT OF US! 🚨 (6.25.17)](https://i.ytimg.com/vi/YO9biMxPgis/default.jpg)
![OUR THOUGHTS ON THE "FIVE FEET APART" MOVIE](https://i.ytimg.com/vi/Oqf_XwHCzkk/default.jpg)
![LIVESTREAM - Purple Hair, Q&A, Proposal Story!!!](https://i.ytimg.com/vi/63O4zwBCwKw/default.jpg)
![🏥 LIVE Hospital Q&A 🏥](https://i.ytimg.com/vi/3Cm5EPPTtek/default.jpg)
![Two Years On Trikafta | An Emotional Anniversary!](https://i.ytimg.com/vi/5mZduxPSS-c/default.jpg)