Explaining My Disability | EEC Syndrome / Ectodermal Dysplasia

Explaining what it's like having EEC Syndrome — ectrodactyly, alopecia, sight loss etc.
Click 'show more' for links! xx

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If you like my videos and podcasts, please consider supporting me on Patreon: http://www.patreon.com/jenvcampbell

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MY BOOKS:

THE GIRL AQUARIUM: https://tinyurl.com/yc6tn9xs

THE BEGINNING OF THE WORLD IN THE MIDDLE OF THE NIGHT https://tinyurl.com/lnz5bb6

FRANKLIN’S FLYING BOOKSHOP: https://tinyurl.com/hlsgkjq

FRANKLIN AND LUNA GO TO THE MOON https://tinyurl.com/yb2xnuv2

FRANKLIN AND LUNA AND THE BOOK OF FAIRY TALES: https://tinyurl.com/y2g9wqv5

THE BOOKSHOP BOOK: https://tinyurl.com/qbs3d2p

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Things mentioned:

Playlist of videos on disfigurement and disability: https://www.youtube.com/playlist?list=PLlRIaAzTjWi5onpjRQzypc_yNfpRtnPVy

NFED: https://www.nfed.org/

Nora's video: https://youtu.be/e0sFIS5Jub0
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WHO I AM

Hello, my name's Jen. I'm an award-winning poet and short story writer. My debut short story collection 'The Beginning of the World in the Middle of the Night' is published by Two Roads, and my children's books 'Franklin's Flying Bookshop,’ ‘Franklin and Luna Go To The Moon’ and ‘Franklin and Luna and the Book of Fairy Tales’ are published by Thames and Hudson. I'm also the author of the Sunday Times bestselling 'Weird Things Customers Say in Bookshops' series, 'The Bookshop Book,' 'The Hungry Ghost Festival’ and ‘The Girl Aquarium.’ I run writing workshops, give talks at universities & book festivals on a variety of topics, judge literary prizes, and take on freelance writing and editing. If you would like to speak with me about the possibility of working together, please get in touch via email: jenvcampbell@gmail.com x

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Where to find me:
Website: http://www.jen-campbell.co.uk
Editorial services: http://www.jen-campbell.co.uk/editorial
Writing Workshops: http://www.jen-campbell.co.uk/writing-workshops
Twitter: http://www.twitter.com/jenvcampbell
Instagram: http://www.instagram.com/jenvcampbell
Patreon: http://www.patreon.com/jenvcampbell
Events: http://www.jen-campbell.co.uk/events
Podcast: http://www.jen-campbell.co.uk/podcast
Facebook: http://tinyurl.com/3o3s4d2
Goodreads: http://tinyurl.com/hs8nxjm
Email: jenvcampbell@gmail.com

(Since starting Youtube, some of you have been asking what's wrong with my hands. This video should answer any questions :) https://www.youtube.com/watch?v=w8tDAQ4wgHA)

This video contains no sponsored content. Books marked with * were sent to me by publishers for an honest review.

Видео Explaining My Disability | EEC Syndrome / Ectodermal Dysplasia канала Jen Campbell