After Unrest - Ketra's Story where health professionals & patients unite. Quiet ver. in text below.
See below for contents, time stamps, a low sensory version without background music, printable brochures and more information.
“AFTER UNREST” is a short documentary about Myalgic Encephalomyelitis (also known as ME/CFS or chronic fatigue syndrome).
This documentary tells Ketra’s story (pictured), and includes talks by health care professionals that have helped Ketra with her illness. It touches on current research and also features Australian patients, their stories and perspectives on debilitating disease. It provides a toolbox of information to help practitioners, patients and families alike.
Severely affected ME/CFS patients suffer from noise sensitivity and struggle to listen to speech, especially with background music. For them there is a low sensory version of After Unrest without music: https://youtu.be/5bhYYwsD8KU.
There is also a transcript that can be downloaded from youtube.
Contents:
Introduction
Ketra's story - 01:54
Health Professionals: 6:57
01- What do many doctors think when they see patients with Myalgic Encephalomyelitis, also known as ME/CFS or Chronic Fatigue Syndrome? 07:13
02- How is ME/CFS diagnosed? 07:33
03- How can General Practitioners help ME/CFS patients? 07:55
04- Are there any tests that can be done to aid a diagnosis? 08:36
05- Can exercise intolerance be measured? Many ME/CFS patients find exercise makes them worse. 10:36
06- How can heart rate monitors and pacing help ME/CFS patients? 13:03
07- Can ME/CFS patients benefit from exercise? 14:26
08- What does post exertional malaise (crash/payback) look like? 15:50
09- Are there any blood tests or biomarkers for ME/CFS? 16:54
10- What do NCNED researchers understand about ME/CFS pathomechanisms? 17:26
11- Could faulty ion channel receptors cause the pain in ME/CFS? 19:06
12- What does NCNED research say about treatments? 20:14
13- Is there any role for psychology in ME/CFS? 21:13
14- When even food triggers your symptoms, what can you eat? 22:04
15- What does research say about allergies, intolerances and sensitivities? 22:51
16- Are sufficient funds directed towards ME/CFS from the Australian medical research council? 23:32
Australian patients & their needs 24:10
Key Points 25:46
Resources 25:54
Dedication 25:59
Credits 26:06
Thank you for watching!
- Ketra Wooding
Note to Gold Coast residents: Unfortunately, Dr Georgina Gibson, the general practitioner who features in this video, is not taking new patients.
ME/CFS HEALTH on Facebook: https://m.facebook.com/mecfshealthpage
Resources:
- Getting Started with Heart Rate Monitoring
- Printable Brochures featuring health professionals, key points and CPET testing results.
- References
https://drive.google.com/open?id=1AQCj7L_KH9saR3vd9FN5TbKxnJv6MIPu
Видео After Unrest - Ketra's Story where health professionals & patients unite. Quiet ver. in text below. канала MECFS HEALTH
“AFTER UNREST” is a short documentary about Myalgic Encephalomyelitis (also known as ME/CFS or chronic fatigue syndrome).
This documentary tells Ketra’s story (pictured), and includes talks by health care professionals that have helped Ketra with her illness. It touches on current research and also features Australian patients, their stories and perspectives on debilitating disease. It provides a toolbox of information to help practitioners, patients and families alike.
Severely affected ME/CFS patients suffer from noise sensitivity and struggle to listen to speech, especially with background music. For them there is a low sensory version of After Unrest without music: https://youtu.be/5bhYYwsD8KU.
There is also a transcript that can be downloaded from youtube.
Contents:
Introduction
Ketra's story - 01:54
Health Professionals: 6:57
01- What do many doctors think when they see patients with Myalgic Encephalomyelitis, also known as ME/CFS or Chronic Fatigue Syndrome? 07:13
02- How is ME/CFS diagnosed? 07:33
03- How can General Practitioners help ME/CFS patients? 07:55
04- Are there any tests that can be done to aid a diagnosis? 08:36
05- Can exercise intolerance be measured? Many ME/CFS patients find exercise makes them worse. 10:36
06- How can heart rate monitors and pacing help ME/CFS patients? 13:03
07- Can ME/CFS patients benefit from exercise? 14:26
08- What does post exertional malaise (crash/payback) look like? 15:50
09- Are there any blood tests or biomarkers for ME/CFS? 16:54
10- What do NCNED researchers understand about ME/CFS pathomechanisms? 17:26
11- Could faulty ion channel receptors cause the pain in ME/CFS? 19:06
12- What does NCNED research say about treatments? 20:14
13- Is there any role for psychology in ME/CFS? 21:13
14- When even food triggers your symptoms, what can you eat? 22:04
15- What does research say about allergies, intolerances and sensitivities? 22:51
16- Are sufficient funds directed towards ME/CFS from the Australian medical research council? 23:32
Australian patients & their needs 24:10
Key Points 25:46
Resources 25:54
Dedication 25:59
Credits 26:06
Thank you for watching!
- Ketra Wooding
Note to Gold Coast residents: Unfortunately, Dr Georgina Gibson, the general practitioner who features in this video, is not taking new patients.
ME/CFS HEALTH on Facebook: https://m.facebook.com/mecfshealthpage
Resources:
- Getting Started with Heart Rate Monitoring
- Printable Brochures featuring health professionals, key points and CPET testing results.
- References
https://drive.google.com/open?id=1AQCj7L_KH9saR3vd9FN5TbKxnJv6MIPu
Видео After Unrest - Ketra's Story where health professionals & patients unite. Quiet ver. in text below. канала MECFS HEALTH
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