Holding Space: Palliative Care in the NICU at Johns Hopkins Children's Center

The expectation and arrival of a new baby is supposed to be a joyful time in a family’s life, but many parents are left reeling when they receive the heartbreaking news that their baby likely won’t live long. Four families share their experiences of loss in Johns Hopkins Children's Center's NICU, and staff speak about the services available through Johns Hopkins’ Perinatal Palliative Care Program to support parents facing the unimaginable: the death of their baby. As medical technology continues to advance, we are more able to discover serious anomalies prenatally, and to sometimes keep babies alive who are born extremely premature and/or with devastating medical conditions. Parents in these situations often have to make difficult and heartrending decisions about their child’s care. The Johns Hopkins’ Pediatric Palliative Care Team provides support to these families in a variety of ways and works hard to make sure that even the shortest lives are infused with sacredness and dignity. Learn more about Palliative Care at Johns Hopkins Children’s Center at http://www.hopkinsmedicine.org/johns-hopkins-childrens-center/what-we-treat/specialties/palliative-care/
Chapters:
1. Palliative Care in the NICU 2:30
2. Making Decisions 4:54
3. Parenting 9:50
4. Siblings 11:51
5. Grieving 14:51
6. More Information 21:09

Видео Holding Space: Palliative Care in the NICU at Johns Hopkins Children's Center канала Johns Hopkins Medicine