Special Needs Child Bedtime Routine // treatments, therapies, and meds
Raelynn has many disabilities, so this is a special needs child bedtime routine. Raelynn's bedtime routine includes her breathing treatments, some therapy, and of course her meds.
AFFILIATE LINKS
CBD: https://usamedicalshop.com/#a_aid=sunshine
Use Code "SUNSHINE" for 30% off!
Fun stuff Raelynn uses:
✔️ Galaxy Projector: https://amzn.to/3yQyR8x
✔️ Towel Warmer: https://amzn.to/3uIQioa
✔️ Travel Pillow: https://amzn.to/3pbsgRv
Must-have medical gadgets/supplies:
✔️ Fingertip Pulse Ox: https://amzn.to/3i92oEr
✔️ Forehead Thermometer: https://amzn.to/2SIQlD3
✔️ Oil Sheets: https://amzn.to/3uGceAk
Helpful accessibility things:
✔️ Wheelchair hook: https://amzn.to/3fFFkve
✔️ Gooseneck Tablet Holder: https://amzn.to/2SPYOEF
Install this Chrome extension to learn new ways to grow your YouTube channel.
✔️ TubeBuddy: https://www.tubebuddy.com/sunshinebaby
Website: https://sunshinebaby.tv
Instagram: https://instagram.com/sunshinebaby_tv
Tiktok: http://tiktok.com/@sunshinebabytv
Subscribe: https://www.youtube.com/channel/UCZn7hETm79vEeavluBxGrnQ?sub_confirmation=1
00:00 Intro
00:25 Breathing Treatments
02:04 Meds & Food
05:40 Hand Splints
07:18 We're Not Perfect
07:41 Goodnight!
ABOUT RAELYNN'S YOUTUBE CHANNEL
Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I'll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube through which she "eats" all of her food. She has a vagus nerve stimulator (vns), and is currently getting intravenous immunoglobulin (ivig) treatments to hopefully help with her seizures. She regularly wears a shaker vest, uses a nebulizer, and a cough assist machine to help her breath better, especially when she seems extra susceptible to aspirating on her oral secretions.
Raelynn’s been to the doctor more times than the rest of our family combined!
In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.
I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I'm a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.
God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.
That's what this channel's about.
We post videos of Raelynn's life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).
If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn's life and assistive technologies! ❤️
https://www.youtube.com/channel/UCZn7hETm79vEeavluBxGrnQ?sub_confirmation=1
#specialneeds #bedtime #routine
https://sunshinebaby.tv
Видео Special Needs Child Bedtime Routine // treatments, therapies, and meds канала SunshineBaby
AFFILIATE LINKS
CBD: https://usamedicalshop.com/#a_aid=sunshine
Use Code "SUNSHINE" for 30% off!
Fun stuff Raelynn uses:
✔️ Galaxy Projector: https://amzn.to/3yQyR8x
✔️ Towel Warmer: https://amzn.to/3uIQioa
✔️ Travel Pillow: https://amzn.to/3pbsgRv
Must-have medical gadgets/supplies:
✔️ Fingertip Pulse Ox: https://amzn.to/3i92oEr
✔️ Forehead Thermometer: https://amzn.to/2SIQlD3
✔️ Oil Sheets: https://amzn.to/3uGceAk
Helpful accessibility things:
✔️ Wheelchair hook: https://amzn.to/3fFFkve
✔️ Gooseneck Tablet Holder: https://amzn.to/2SPYOEF
Install this Chrome extension to learn new ways to grow your YouTube channel.
✔️ TubeBuddy: https://www.tubebuddy.com/sunshinebaby
Website: https://sunshinebaby.tv
Instagram: https://instagram.com/sunshinebaby_tv
Tiktok: http://tiktok.com/@sunshinebabytv
Subscribe: https://www.youtube.com/channel/UCZn7hETm79vEeavluBxGrnQ?sub_confirmation=1
00:00 Intro
00:25 Breathing Treatments
02:04 Meds & Food
05:40 Hand Splints
07:18 We're Not Perfect
07:41 Goodnight!
ABOUT RAELYNN'S YOUTUBE CHANNEL
Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I'll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube through which she "eats" all of her food. She has a vagus nerve stimulator (vns), and is currently getting intravenous immunoglobulin (ivig) treatments to hopefully help with her seizures. She regularly wears a shaker vest, uses a nebulizer, and a cough assist machine to help her breath better, especially when she seems extra susceptible to aspirating on her oral secretions.
Raelynn’s been to the doctor more times than the rest of our family combined!
In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.
I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I'm a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.
God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.
That's what this channel's about.
We post videos of Raelynn's life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).
If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn's life and assistive technologies! ❤️
https://www.youtube.com/channel/UCZn7hETm79vEeavluBxGrnQ?sub_confirmation=1
#specialneeds #bedtime #routine
https://sunshinebaby.tv
Видео Special Needs Child Bedtime Routine // treatments, therapies, and meds канала SunshineBaby
Показать
Комментарии отсутствуют
Информация о видео
Другие видео канала
How We Live With Autism: Our Special Needs & Strengths | Wired Differently | CNA DocumentaryMedically Complex Child's Morning Routine with Mom (and Dad!)Two Kids. Two Undiagnosed Disabilities.Getting Ready for SchoolA Day in the Life of a Medically Complex ChildAnswering Questions about Our Special Needs Son // China Adoption, Cerebral Palsy, etcHer eyes aren't doing well.The Orphans of COVID: America's Hidden TollDaily routine with my special needs children / mom routinesGetting an Ultrasound due to Urinary RetentionSaying "Goodbye" to Our Medically Complex ChildA Birthday Surprise for our Cerebral Palsy Girl!Special Needs Child's Night Routine3 Seizures // Still in the Hospital // it's a new day.Having Hip Surgery // it was a long day.What is SYNGAP1 | Rare Genetic Disorder | Special Needs Day in the Life | Diagnosis after 14 yearsBedtime Routine for Medically Complex DaughterA CHRISTMAS Day in the Life of a Medically Complex ChildSpecial Needs School Routine // Vision therapy, Speech therapy, and School // Seizure from March 14Taking Care of a Medically Complex Child