Meet Molly and Robbie: 3-year-olds share rare diagnosis | Boston Children's Hospital
Learn more: https://thriving.childrenshospital.org/families-of-girls-with-spg47-find-support-in-each-other/
Robbie Edwards and Molly Duffy are among only 11 children in the world to be diagnosed with an extremely rare genetic disorder, called spastic parapalegia-47 (SPG47), and the only ones who live in the United States. On a recent fall afternoon, these two adorable girls and their parents met in person for the first time at Boston Children’s Hospital, where they both receive care.
Learn more about SPG47: http://www.childrenshospital.org/conditions-and-treatments/conditions/spastic-paraplegia-47
Видео Meet Molly and Robbie: 3-year-olds share rare diagnosis | Boston Children's Hospital канала Boston Children's Hospital
Robbie Edwards and Molly Duffy are among only 11 children in the world to be diagnosed with an extremely rare genetic disorder, called spastic parapalegia-47 (SPG47), and the only ones who live in the United States. On a recent fall afternoon, these two adorable girls and their parents met in person for the first time at Boston Children’s Hospital, where they both receive care.
Learn more about SPG47: http://www.childrenshospital.org/conditions-and-treatments/conditions/spastic-paraplegia-47
Видео Meet Molly and Robbie: 3-year-olds share rare diagnosis | Boston Children's Hospital канала Boston Children's Hospital
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20 декабря 2016 г. 20:25:22
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