How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC]

I have a genetic degenerative condition called Ehlers-Danlos Syndrome, it affects/weakens the joints, skin, blood vessels, and internal organs; within the past few years, my standing/walking limits have steadily declined. Due to chronic pain, joint hypermobility (or laxity/weakness), the risk of injury, dysautonomia, and cardiovascular issues I can only stand/walk for a few seconds to a few minutes (average of 60 seconds) at a time depending on my symptoms, injury, etc. Currently, in order to walk I need very specific circumstances, I need places to sit consistently available to me, guarantees of only having to walk in short bursts, as well as the security of knowing the layout of a place in order to avoid injury. The rest of the time I am a wheelchair user, it is the safest, least painful, most independent, and most efficient way for me to be mobile. In this video, I speak candidly about the mobility aids I use and when I use them.

To learn more about what is actually happening inside my body with EDS check out my previous video "Draw My Body #ThisIsMyEDS"
https://www.youtube.com/watch?v=bU6ZgIEX0DQ

As well as "What EDS Is like on MY Body #ThisIsMyEDS" where I speak about how it affects my daily life:
https://www.youtube.com/watch?v=qMk-JpMauPw
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Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.

Видео How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC] канала Annie Elainey