Wilson Disease – Genetic Testing and Emerging Treatments

This webinar provides guidance and education on the causes, symptoms, diagnosis, and treatment of Wilson Disease. It also touches on the initial signs of Wilson Disease, daily challenges, dietary issues, side effects of disease management and the patient experience. The webinar is designed for Wilson Disease patients and caregivers, and was co-hosted by the Canadian Liver Foundation.

More information about Wilson Disease can be found online at the American Liver Foundation website at https://liverfoundation.org/for-patients/about-the-liver/diseases-of-the-liver/wilson-disease/ and at the Canadian Liver Foundation website at https://www.liver.ca/patients-caregivers/liver-diseases/wilson-disease/.

For more information about the American Liver Foundation, visit https://liverfoundation.org/for-patients/about-alf/. For more information about the Canadian Liver Foundation, visit https://www.liver.ca/we-are-liver/about-clf/.

This webinar features these three speakers:

Dr. Nadia Ovchinsky, MD, MBA
Albert Einstein College of Medicine
Children’s Hospital at Montefiore

Dr. Eve Roberts, MD, PhD, FRCPC
University of King’s College
Halifax, NS

Amy Totte (Wilson Disease patient)
Manitoba, Canada

The following important chapters are featured in this webinar. Click the time stamp links to advance the video to each chapter section…
00:00 – ALF Introduction
03:05 – CLF Introduction
04:00 – Dr. Eve Roberts Introduction
05:35 – Case Studies #1 & #2
12:15 – Dr. Roberts' Presentation on Genetic Diagnosis of Wilson Disease
30:50 – Dr. Nadia Ovchinsky Introduction
32:15 – Dr. Ovchinsky's Presentation on Treatment Options for Patients with Wilson Disease
49:53 – Amy Totte's Personal Story of Living with Wilson Disease
1:10:10 – Q&A
1:17:15 – Conclusion

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Видео Wilson Disease – Genetic Testing and Emerging Treatments канала American Liver Foundation