Evie goes to CureSMA @ Disneyland
It's been almost 11 years since Blakely's SMA diagnosis and we have never been to a CureSMA conference. This will be our first! We have been invited to tell our family story at the breakfast symposium. Come along with us as we go to the conference and Disneyland!
Видео Evie goes to CureSMA @ Disneyland канала SMA Dad
Видео Evie goes to CureSMA @ Disneyland канала SMA Dad
Показать
Комментарии отсутствуют
Информация о видео
Другие видео канала
Evie's 13th dose of SpinrazaEvie was a flower girlWinter Hike with Evie (SMA Type 1 on Spinraza)Blakely and Evie's Wagon from CureSMAEvie gets tested for COVID-19Evie Goes to the Spiral Jetty, Great Salt LakeDoes Spinraza work? | Evie’s 2 year milestonesEvie's 20th Spinraza for SMA Type 1Evie's 1st Road TripEvie's 22nd SpinrazaBeating SMA | Evie goes to CaliforniaEvie Goes Back to CaliforniaEvie goes to Cure SMA Summit of Strength ConferenceEvie's 17th Spinraza | A Decade Living w SMAEvie's 14th Spinraza InjectionDoes Spinraza work? | Evie’s 1st year milestonesRealization of a Dream | Evie learns to ski w/SMA Type 1Evie's 1st Steps (20 Month Old SMA Type 1 walking receiving Spinraza)!!!Evie's 9th Spinraza InjectionEvie's 2.5 year old update and Spinraza 11