What is syringomyelia?
At the NORD Rare Disease and Orphan Drug Breakthrough Summit in Arlington VA, we talked with Beth Nguyen, RN, a patient with syringomyelia, about the rare disease in which cysts form inside the spinal cord. These cysts lead to multiple symptoms that impacts the person's ability to walk, breath, digest, etc.
For more information, visit www.wstfcure.org
Видео What is syringomyelia? канала Rare Disease Report
For more information, visit www.wstfcure.org
Видео What is syringomyelia? канала Rare Disease Report
Показать
Комментарии отсутствуют
Информация о видео
Другие видео канала
Syringomyelia Rapid ReviewA Day in the Life of a Syringomyelia PatientChiari Malformation - Diagnosis and TreatmentSyringomyelia - Symptoms, Diagnosis and Management.Fritz Tuaa shares his journey living with SyringomyeliaSyringomyelia - CRASH! Medical Review SeriesWhat Makes RT001 Unique?2016 ASAP CM/SM Conference "Syringomyelia:..." Dr. JacquesChiari and syrinx - How these can relate to cervical instabilityWhat Are Next Steps for Retrotope's RT001?Chiari Management: Non-Surgical OptionsFDA Approves First Chemotherapy-Free Treatment for Waldenstrom's MacroglobulinemiaPVCs: Symptoms and Treatment - in Plain English!Feel This Pain: S2E6 SyringomyeliaGerm Cell Tumors Have the Potential to Become LeukemiaHumility- "The Best Characteristic in Medicine"Syringomyelia2019 Think Tank: "Symptoms Worsen Despite 'Successful' Syringomyelia Surgery" - Jay Shetty, MBBSUnderstanding Genetics to Develop Future Treatments for Rare CancersJasmine Zain, MD, Highlights Current & Upcoming T-Cell Lymphomas Treatments