The Boy Whose Skin Grows Too Fast

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FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ten times the normal rate, leaving him at risk of life-threatening infection. Evan, from Goshen, Connecticut, was born with Harlequin Ichthyosis, a genetic disorder that leaves him with scales across his entire body. Suffering from the severest form of the disease, Evan is at constant risk of infection - requiring him to have two baths a day so 33-year-old mum De De can scrub off the excess skin. Currently there is no cure for Harlequin Ichthyosis, but despite his condition Evan remains a lively, happy child, who is incredibly popular at school and loves to play with his younger brother Cenzo.  

For more information on Harlequin Ichthyosis and other severe skin conditions, please visit http://www.firstskinfoundation.org/

Videographer / director: Steven Schloss
Producer: Tom Midlane, Ellie Winstanley
Editor: Jack Stevens

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