Episode 9 - Empowering and Uplifting With Maya Pinn

Maya is a mother to two children under 6, one of whom has a rare genetic condition 'IQsec2-Associated Neurodevelopmental disorder'. Maya is currently completing my honours year at the University of Melbourne, in Biomedical Ethics at the Murdoch Children's Research Institute. Maya’s part time role is the administration officer and Program coordinator at Syndromes Without A Name (SWAN). SWAN provide peer support for families with Undiagnosed or Rare Genetic Conditions. Maya’s personal advocacy spans research, policy reform, and community engagement, aiming for a more inclusive future for all children. Through capacity-building approaches, Maya strives to empower and uplift, leaving a lasting impact on society, particularly in Paediatric Rare Disease. Separately, Maya owns and run RareWear Australia; An adaptive clothing brand.

Maya was also recently named the 2024 City of Casey Young citizen of the year and was awarded The Inaugural Kevin Murfitt Disability and Inclusion Pathway award at Deakin University.

Видео Episode 9 - Empowering and Uplifting With Maya Pinn канала Paul, Mark and the Tech Guy