ME/CFS and Long COVID: What's the Connection?

#MEAction hosted a seminar for COVID-19 long haulers, or people with 'long COVID', to discuss the potential for the SARS-CoV-2 virus to trigger the often post-viral neurological disease, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Our panelists are an expert clinician, Dr. Lucinda Bateman, MD., and three people with lived experience of ME/CFS. No matter your eventual diagnosis, we believe this information will help many who are experiencing chronic illness for the first time.

Resources and links from the seminar:

* Using A Heart Rate Monitor To Prevent Post-Exertional Malaise In ME/CFS -https://www.prohealth.com/me-cfs/library/using-heart-rate-monitor-prevent-post-exertional-malaise-cfs-91620

Books:
* How to Be a Patient: (https://www.harpercollins.com/products/how-to-be-a-patient-sana-goldberg?variant=32117248393250) Sana Goldberg, RN

* How To Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers: (https://wisdomexperience.org/product/how-be-sick-second-edition/) Toni Bernhard

"The author lives with ME/CFS. There’s a great pocket version (https://wisdomexperience.org/product/how-to-be-sick-your-pocket-companion/)

Articles:
* Beyond The Bullshit Of ‘Too Bad, So Sad’: On Life With Chronic Illness and Disabilities (https://medium.com/@Asher_Wolf/beyond-the-bullshit-of-too-bad-so-sad-on-life-with-chronic-illness-and-disabilities-d01f256475e1)
Asher Wolf, Medium

* How Not to Track Symptoms, and Why, and When to Do It Anyway (https://thecrankyqueer.substack.com/p/how-not-to-track-symptoms-and-why-b77)
JD Davids, Cranky Queer Guide to Chronic Illness

Printables:
* #MEAction’s Hospitalization Kit Can be found on COVID resources page: (https://www.meaction.net/covid-19/)
One handout is a fillable form to hand to new doctors; the other is a packing list and advice.

How To Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers (https://wisdomexperience.org/product/how-be-sick-second-edition/) by Toni Bernhard.

7 Tips for Making Peace With Chronic Pain and Illness (https://www.psychologytoday.com/us/blog/turning-straw-gold/201809/7-tips-making-peace-chronic-pain-and-illness)

#MEAction's 'Diagnosis and management of myalgic encephalomyelitis' can be found on #MEAction's tools page, in addition to many other ME resources.
https://www.meaction.net/tools/

Thank you to our panelists, to Body Politic, the COVID-19 Working Group New York and to our moderator Terri Wilder for sharing your time and knowledge!

Видео ME/CFS and Long COVID: What's the Connection? канала The ME Action Network