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SMA Type 1/These parents discuss whether or not to try an experimental trial for their son.
"We weren't tempted to do any experimental trials." https://youtu.be/ULeYDO1v2fw
Parents of a little boy with SMA Type 1 talk about how they considered (and dismissed) doing experimental trials. Mom didn't want to fly all around. Dad: "I know it might help children down the road and so it was a selfish decision on our part." Mom: "experimental things scare me." If your child has SMA Type 1 or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.
Видео SMA Type 1/These parents discuss whether or not to try an experimental trial for their son. канала Courageous Parents Network
Parents of a little boy with SMA Type 1 talk about how they considered (and dismissed) doing experimental trials. Mom didn't want to fly all around. Dad: "I know it might help children down the road and so it was a selfish decision on our part." Mom: "experimental things scare me." If your child has SMA Type 1 or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.
Видео SMA Type 1/These parents discuss whether or not to try an experimental trial for their son. канала Courageous Parents Network
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17 августа 2016 г. 0:56:45
00:03:21
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