NLM Funding Spotlight | Multiple Sclerosis Falls Insight Track

The purpose of this study is to develop an application: MS Falls Insight Track (MS FIT) which allows Multiple Sclerosis patients to log their falls and near falls, view their MS relevant data and responses to the clinic intake survey as well as communicate with their care team about falls and receive educational material on falls prevention.

https://clinicaltrials.ucsf.edu/trial/NCT05837949

Transcript:
[Music] [Riley Bove, MD] People with multiple sclerosis, MS, are at higher risk of falls
and it can be due from any combination of difficulty with cognitive processing, vision, strength, balance, or maybe rushing because they have to go to the bathroom.

The project that we have submitted to NLM for funding is MS FIT. MS Falls Insight Track.

This is a digital intervention. It was designed by the intended users, so patients, clinicians, and other stakeholders.

And it's designed to improve the reporting around falls and attention to fall prevention.

[Tara Mutukisna] I was diagnosed with MS in 2016. I think it was tripping on the sidewalks and in the road.

It became pretty common and frustrating. As a competitive person, I didn't appreciate not being able to walk straight and not fall.

[Valerie Block, PT] Fear of falling can stop people doing activities.
And not doing activities means that they're not out being social.

It can increase depression. It can reduce physical activity which then has a whole slew of different issues.

[Bove] I see a patient every six months and I know that most of the patient's lived experience is outside of that clinical visit.

And for that reason, we needed to build a system that allowed people to collect information about their falls longitudinally in as simple and unobtrusive and patient-friendly way possible.

And ping clinicians, so that we can better intervene when there is a near fall or a fall, and then continue to intervene until all of the sort of fall reduction strategies are in place.

[Mutukisna] The surveys are so straightforward and clear.

So for me, it's just how many falls have you had today or what was the climate that really impacted your walking ability.

[Bove] It's hard for me to see how this process would have been accomplished without funding from the National Library of Medicine because of the time and care that it takes to build things in a way that they're going to succeed with the intended users.

[Mutukisna] I'm just excited that my the doctors of UCSF are allowing me to live my life, not just treat my MS.

[Music]

[Music fades to Silence]

#multiplesclerosisawareness #multiplesclerosisfighter #multiplesclerosissociety @ucsf

Видео NLM Funding Spotlight | Multiple Sclerosis Falls Insight Track канала National Library of Medicine