Living with FAP: Jenny's Patient Journey

For FAP Awareness Week, Recursion is highlighting one of the strongest advocates in the space.

Living with the rare disease familial adenomatous polyposis (FAP) means a lifetime of uncertainty, surgeries, and complications. Jenny Jones, founder of Life's a Polyp Foundation, along with her dad, Timothy Jones, shared what that journey has looked like for their family – where not only Jenny, but her mother and grandfather, struggled with the disease which results in hundreds to thousands of polyps developing in the GI tract that have 100% likelihood of turning cancerous if not removed.

Once she was diagnosed at age 8, Jenny says, FAP became a part of her daily life. By age 10, she’d had multiple surgeries, including the removal of her colon. Her dad called it a miracle that she survived.

The major surgeries continued throughout her life – and have led to numerous challenges, including nutrient deficiencies, dehydration, limitations in what she can eat, painful bowel movements, and medical PTSD. “It’s something that’s always on the mind,” she says.

Jenny has now dedicated her life to serving as a resource and building a trusted network for the FAP community via her foundation, and supports research into new treatment options for FAP patients who currently have no non-surgical options available.

Recursion is working toward solutions for patients with FAP.

👉 Learn more at: https://recursion.com/

#raredisease #FAP #TechBio #AIdrugdiscovery #patients #FAPawarenessweek

Видео Living with FAP: Jenny's Patient Journey канала Recursion