"1 in 10 Americans Will Face a Rare Disease" Katie Couric, Nasha Fitter, Tania Simoncelli | SXSW 24
Jennifer Canvasser (Founder and Executive Director, NEC Society), Nasha Fitter (Co-Founder, FOXG1 Research Foundation), Monkol Lek (Assistant Professor of Genetics, Yale School of Medicine and Rare Disease Patient), Tania Simoncelli (VP of Science in Society, Chan Zuckerberg Intiative) and Katie Couric (Award-Winning Journalist, #1 NYT Best-Selling Author, & Co-Founder, Katie Couric Media) joined us at the SHE Media Co-Lab at SXSW 2024. They discussed how as many as 10,000 rare diseases affect over 300 million people globally, but many rare disease patients have never met anyone else with their condition. So how do patients connect and drive research in their communities? Our speakers revealed how patients and researchers are partnering to transform the research ecosystem and advance treatments and cures for their communities. Visit www.theflowspace.com for more information.
Video credits
VP, Video: Reshma Gopaldas
Senior Editor: Allie O'Connell
#sxsw @SXSW @KatieCouric
Видео "1 in 10 Americans Will Face a Rare Disease" Katie Couric, Nasha Fitter, Tania Simoncelli | SXSW 24 канала Flow Space
Video credits
VP, Video: Reshma Gopaldas
Senior Editor: Allie O'Connell
#sxsw @SXSW @KatieCouric
Видео "1 in 10 Americans Will Face a Rare Disease" Katie Couric, Nasha Fitter, Tania Simoncelli | SXSW 24 канала Flow Space
Показать
Комментарии отсутствуют
Информация о видео
Другие видео канала
How Attacks on Sexual & Reproductive Rights in Texas Are Impacting Women's Healthcare | SXSW 2024Hospice Nurse Hadley Vlahos Explains Hospice & How to Talk About Dying | Asking For a FriendEmma Lovewell on How Peloton Came Through For Her During Her Lowest PointNitika Chopra on Psoriasis & How to Help Someone with Chronic Illness | Asking for a FriendJean Oelwang | How Relationships & Partnerships Impact Success & Mental Health | SXSW 24Alysia Reiner Explains What A LEEP Procedure Feels Like | Cervical Cancer AwarenessPeloton Instructor, Emma Lovewell, On Gardening with Her MomIlana Glazer: “That Took My Breath Away” | Reaction to Banned Women's Health Words"We need to be strong and not small" | Dr. Mary Claire HaverOlympic Gymnast Shannon Miller on the Diagnosis That Changed Her LifeGabby Reece Talks Volleyball & the Importance of Sports for Women | SXSW 24Stacy London | "Everybody Said 'Nobody Wanted to Watch Middle-Aged Women'"Busy Philipps Wishes She Hadn't Listened to Diet Culture #shortsWhy Menopause Needs to End with Dr. Piraye Yurttas BeimAndie MacDowell Reveals the Worst Question She's Been Asked on a Red CarpetStacy London Shares Her 'Spoiler Alert' on MenopauseSophia Bush on Women's Health Banned Words: "What are we doing? I'm embarrassed for us!"Psychedelics for Intimacy with Dr. Dave Rabin, Lauren Taus & Dr. Greg Dillon | SXSWVolleyball Player Gabby Reece | "Sometimes I'm Laird Hamilton's wife, whatever that means."Comedians Arielle Isaac Norman & Kandace Medina Use Humor to Talk Taboo Health Topics | SXSW 24Dr. Sharon Malone on How Michelle Obama Helped Her Put Menopause on the Map