Duchenne Advocacy in Washington, D.C. | Fighting for Our Sons

We take you inside our Duchenne advocacy trip to Washington, D.C., where we joined families from across the country to speak with our state representatives about Duchenne muscular dystrophy. As parents of two little boys living with Duchenne, we shared our story in hopes of pushing for better treatments, more research funding, and lasting change for this rare disease.

From the early morning subway rides to walking the halls of Capitol Hill, we advocated for FY26 federal funding, Medicaid protections, and the re-authorization of the PRV program. This is what it looks like when families fight for a future! #dmd #advocate #washingtondc #rarediseases #awareness #musculardystrophy

Want to help? You can take action right now!
Click here to find your state representatives and send them your story:
https://engage.parentprojectmd.org/2025-medicaidcuts

We love to create videos like this for the families who want to be part of the #duchenne journey but can’t always travel to the advocacy events or family conferences. By sharing our experiences, we hope to bring you with us—so you can feel empowered, educated, and never alone!

Learn more about DMD advocacy here:
https://www.parentprojectmd.org/advocacy/

This is the life of a DMD Family.

Disclaimer: This is not medical advice. We are just a normal family, with extraordinary kids, just like you. Please consult with your doctors before making any significant medical decisions. Most importantly- do your own research.

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Видео Duchenne Advocacy in Washington, D.C. | Fighting for Our Sons канала The Bafus Family