The Wonderful Reality of Having a Trisomy Child || Trisomy 13 / Patau Syndrome (13トリソミー)

This video is made by the loving father of a Trisomy 13 child (currently almost 3 years old). My son's name is Elijah, but we call him Lyly. Most of the pictures and video clips in this video are of him.

See all my Trisomy videos on my channel:
https://www.youtube.com/channel/UC2XGjChcEJzwebMbOkO5cbw

From 9:16 onwards, you will find a collection of photos and videos donated by members of the Trisomy 13 LIFE Support - Living with Patau Syndrome Facebook Group. If you are a parent (or relative) of someone with Trisomy 13, I highly recommend applying to join this group. It is filled with wonderful, kind, caring, and generous mothers and fathers. They are a constant source of inspiration for me as a father, and as a man.

Thank you to Tracy Harkin and all those at Every Life Counts
(everylifecounts.ie) for allowing me the use of a piece of their video of
Tracy & Tom's beautiful daughter Kathleen Rose. Their video was one of
the first I ever saw about Trisomy, after my son was born. It gave
me hope, helped me understand my son's condition, his limits,
his potential. I am very grateful, and I beg all reading this to
watch the video. Video link below:

Kathleen Rose: Trisomy 13: How Our Beautiful Girl Surprised us all!
https://www.youtube.com/watch?v=f9TrQtGVoso

Every Life Counts
(everylifecounts.ie)
"A place where parents can share their memories, their stories, their love and their pain; where their children are remembered and cherished; and where we acknowledge that every life counts."

{{ Trisomy Parents, Carers & Interested parties - please visit www.livingwithtrisomy13.org
It is a wonderful facebook group full of caring, compassionate, and knowledgeable people with Trisomy 13 children. It is an absolutely invaluable resource that has helped me immensely. }}

My Trisomy Blog called "The Trisomy Life":
www.thetrisomylife.com
The Wonderful Reality of Having a Trisomy Child blog post (Transcript):
http://www.thetrisomylife.com/2020/11/the-wonderful-reality-of-having-trisomy.html

#trisomy13
#trisomy
#13トリソミー
#trisomie
#patau
#patausyndrome
#edwardssyndrome
#トリソミー
#trisomyawareness
#trisomy13awareness
#livingwithtrisomy13
#livingwithtrisomy

Видео The Wonderful Reality of Having a Trisomy Child || Trisomy 13 / Patau Syndrome (13トリソミー) канала Samuel T