Christian Rubio Talks About Global Genes and Advocacy for Patients with Rare Diseases

400 million worldwide are impacted with rare diseases and approximately 30 million in America. With organizations like Global Genes we have come quite a ways to evangelize what amounts to very vulnerable groups.

In this episode Christian Rubio talks about Global Genes and how they started, their goals, and what the future looks like, especially while dealing with COVID-19.

To find out more about Global Genes and Christian Rubio please see the links below:
Continuity of Care RARE Patient Impact Grant program: https://globalgenes.org/raregrant/
RARE Drug Development Symposium: www.globalgenes.org/rdds
RARE List: https://globalgenes.org/rare-list/
https://globalgenes.org/contact-us/

Check out their YouTube Channel here
https://www.youtube.com/channel/UC3kGR-FsXTEbtGj1Ljg4CxA

Видео Christian Rubio Talks About Global Genes and Advocacy for Patients with Rare Diseases канала To Be Frank