EDS Patient Advocacy with Maggie Buckley | Finding Your Range Podcast S2:E11

We often find it hard to advocate for ourselves. I’m delighted to be joined this week by a leading expert of patient advocacy. Please join me in welcoming Maggie Buckley to Finding Your Range.

Maggie Buckley, MBA, BCPA, has been a Health and Patient advocate for more than 25 years while living with the chronic pain condition Ehlers-Danlos Syndrome. She has served on the boards of several non-profit patient and professional organizations. She has testified at local, state and federal policy hearings, spoken at conferences and in the media, written articles and coached hundreds of people to self-advocate for better care written articles. Maggie has an M.B.A. in accounting with experience in banking and business management. In 2019 she became a Board Certified Patient Advocate (BCPA).

Maggie kindly shared the following resources with us too. You may find some of these useful information:

Self-Care:

Free Online Mindfulness-Based Stress Reduction (MBSR) https://palousemindfulness.com/

Free PDF Osteopathic Treatment Guide for Common Quarantine Concerns https://docs.google.com/document/d/1dPrJdKXMjB8bbQg8CHfeXKyG5AHhaPiszyN93HLs0kw/edit

Understanding the traditional Mexican-American healing approach Curanderismo http://www.healingtherapies.info/Curanderismo2.htm

Free Self-Care Skills Series https://sohl.training/

Guide to Supported Self Care https://www.painaustralia.org.au/find-support/getting-the-right-care-1/supported-self-care



Pain Support:

The American Chronic Pain Association https://www.theacpa.org/

My Chronic Pain Team https://www.mychronicpainteam.com/

The Pain Community https://paincommunity.org/

The US Pain Foundation https://uspainfoundation.org/



Pain References & Resources:

Alliance to Advance Comprehensive Pain Management https://painmanagementalliance.org/

American Academy of Pain Management https://painmed.org/

Pain Australia https://www.painaustralia.org.au/

The Pain Community https://paincommunity.org/education/pain-resources/

International Association for The Study of Pain https://www.iasp-pain.org/

The Canadian Pain Society https://www.canadianpainsociety.ca/



Patient Advocacy:

If you are interested in engaging a Patient Advocate to work through things, check out these organizations:



Patient Advocate Foundation https://www.patientadvocate.org/

Greater National Advocates https://www.gnanow.org/

Aging Life Care Association https://www.aginglifecare.org//

Health Advocate X https://www.healthadvocatex.org/

National Association of Healthcare Advocacy https://www.nahac.com/

My Care Alliance https://www.mycarealliance.com/

Patient Advocate Certification Board https://www.pacboard.org/



Each organization offers a way to search for an advocate for your particular issue or area. Fees range from free, to sliding scale, to hourly rate to case rate. The first two above have more free resources and referrals. All of them have directories that are free to access.



Thank you for joining us Maggie.

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P.S. Please do check with your medical practitioner if you decide to try my exercises or courses - especially if you haven't exercised in a while, are pregnant, if you have a balance disorder, are new to exercise or have an ongoing medical condition that may affect your ability to exercise.

Видео EDS Patient Advocacy with Maggie Buckley | Finding Your Range Podcast S2:E11 канала Jeannie Di Bon