DAY IN THE LIFE| JOHNSON FAMILY| NANA AND PAPA IN TOWN

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My sweet daughter Caliyah Joy was born with a rare syndrome called Pfeiffer Syndrome, which causes premature fusion of certain bones of the skull (craniosynostosis), affecting the shape of the head and face. You will see her overcome many obstacles and live life to the fullest despite her disability. If you are still wondering, what is Pfeiffer Syndrome? Well you can learn all about it here, https://www.youtube.com/watch?v=XqqXvohWnVY&t=193s
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Видео DAY IN THE LIFE| JOHNSON FAMILY| NANA AND PAPA IN TOWN канала The Johnson Family