Rare Disorder Means I Get Cancer Scans Every 3 Months! | Lainie's Story (Li-Fraumeni Syndrome)
By the time Lainie was 26, she had been diagnosed with 4 cancers and then a 5th only a few years later. In part two of this conversation, she opens up about how she lives with Li-Fraumeni syndrome, a rare disorder that makes her more susceptible to growing cancer, her experience of hair loss right before her wedding and how her support system has been crucial to her cancer journey.
Watch Lainie's Segment 1 Video:
I have been Diagnosed with 5 Different Cancers but I am Thriving: https://youtu.be/jaDYvorrkPE
Full story & transcript → https://www.thepatientstory.com/patient-stories/breast-cancer/invasive-ductal-carcinoma/lainie-j/
The interview has only been edited for clarity.
Join Our Community:
Website : https://www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
____________________________
Contents of the Video:
00:00 - Intro
01:54 - Describe your treatment
03:30 - Getting a 5th cancer diagnosis
04:43 - Describe your side effects
05:31 - Experiencing hair loss
07:59 - Getting scans every 3 months
10:29 - Importance of having a support system
12:57 - Trusting your instincts
15:49 - Words of advice
____________________________
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #adrenalcancer #adcsm #bcsm #breastcancer #sarcoma #scmsm #thyroidcancer #thycsm #melanoma #melsm #fivecancers #lifraumenisyndrome #cancerawareness
Видео Rare Disorder Means I Get Cancer Scans Every 3 Months! | Lainie's Story (Li-Fraumeni Syndrome) канала The Patient Story
Watch Lainie's Segment 1 Video:
I have been Diagnosed with 5 Different Cancers but I am Thriving: https://youtu.be/jaDYvorrkPE
Full story & transcript → https://www.thepatientstory.com/patient-stories/breast-cancer/invasive-ductal-carcinoma/lainie-j/
The interview has only been edited for clarity.
Join Our Community:
Website : https://www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
____________________________
Contents of the Video:
00:00 - Intro
01:54 - Describe your treatment
03:30 - Getting a 5th cancer diagnosis
04:43 - Describe your side effects
05:31 - Experiencing hair loss
07:59 - Getting scans every 3 months
10:29 - Importance of having a support system
12:57 - Trusting your instincts
15:49 - Words of advice
____________________________
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #adrenalcancer #adcsm #bcsm #breastcancer #sarcoma #scmsm #thyroidcancer #thycsm #melanoma #melsm #fivecancers #lifraumenisyndrome #cancerawareness
Видео Rare Disorder Means I Get Cancer Scans Every 3 Months! | Lainie's Story (Li-Fraumeni Syndrome) канала The Patient Story
Показать
Комментарии отсутствуют
Информация о видео
Другие видео канала
Advances in GVHD Treatments and Clinical TrialsFreezing My Eggs During My Cancer Treatment | Paige's Fertility Preservation Story (Lymphoma)What are MPNs? Top Specialist Talks Symptoms and Diagnosis | Dr. John Mascarenhas5 Health Insurance Tips Every Cancer Patient Needs! | The Patient StoryIt Took Years for My Cancer Diagnosis to Set In #shortsI've Been Diagnosed with THREE cancers: How I Live My life | Keith's Story | The Patient StoryEmerging Bispecifics Myeloma Patients Should Know About | Dr. Joshua Richter | The Patient StoryLessons from My Dad: How His Cancer Diagnosis Taught Me to Advocate for My HealthI Got Cancer, Then I Got Help: Why Mental Healthcare Matters | Ariane’s Story | The Patient StoryThe High Cost of Cancer Treatment is a Huge Struggle & Burden | Jeff's CLL StoryVictoria Secret Model Talks Cancer Survivorship: "Surviving is Ultimately Getting Out of Bed"What Helped Me Most During Chemotherapy | Sonia’s Story | Non-Hodgkin Lymphoma | The Patient StoryI Didn't Want to "Show My Weakness" When I Got Cancer | Emmanuel's Hodgkin Lymphoma StoryThe Struggle for Intimacy with My Partner After Cancer | Mary Clare B. | The Patient VoicesGoing Through a CANCER Clinical Trial: How it Helped with My Aggressive Cancer | The Patient StoryGetting Back My Spark After Medication Doom #shortsI had to Accept My Cancer Diagnosis & Chose to Fight"Be a Rock" is TERRIBLE Advice. I am Human #shortsHow I Got Through Prostate Cancer (& The Importance of Early Screening!) | Theo's StoryGetting the RIGHT Cancer Diagnosis after Doctor Miscalculated My Numbers | Natalia's StoryI Was Diagnosed with Cancer and SO WAS MY TWIN Brother #shorts