A moving tale of resilience - the story of KDSP

"We were made to believe, with all our conviction, that our daughter's life was not worthy of living..." says Ali Allawala, reflecting on the trauma that he and his wife Farzeen faced soon after the birth of their first daughter, Alaiyah.

Alaiyah was born with a diagnosis of Down syndrome.

"When everybody gave up hope on her... she fought back," says Ali, as he recounts the inspirational tale of resilience that is manifested not only in Alaiyah's life, but also in the Karachi Down Syndrome Program - which Ali and Farzeen co-founded in 2014.

KDSP provides various services for children and adults with Down syndrome - and guides their caregivers into ensuring that their development and integration into 'typical' society does not suffer because of the stigma associated with the genetic condition.

Watch this interview to listen to the entire story, how KDSP operates (04:48), (07:03); and the cycle of emotions a parent goes through on this unique journey (08:06).
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[Correction]: The subtitles at 9:00 say 'carrier typing,' whereas the name of the testing procedure is 'karyotyping'

#Downsyndrome #Awareness #KarachiDownSyndromeProgram
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