Bullied Because Of My Rare Genetic Condition | SHAKE MY BEAUTY

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AN 18-YEAR-OLD who was bullied over her rare genetic condition - that severely affects her appearance - has silenced her critics by embracing her disorder on social media. Hannah, from Mirfield, UK, was born with Hay-Wells syndrome, also known as Ectodermal Dysplasia, - a condition that has left her hair, teeth, and skin undeveloped. Hannah, who is one of only eight people in the UK and 30 world-wide known to have this disorder, decided to embrace it and is on a journey to become a disabled model. She also started posting videos of her on TikTok and Instagram to raise awareness of her condition and help other people with Hay-Wells syndrome.

Videographer: Jonathan Robinson
Producers: Rafaela Kuznec, Nathalie Bonney, Ruby Coote
Editors: Alex Lubetkin

Follow more of Hannah's story:
https://www.instagram.com/hannahharpin/

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