A Kid with One of the World's Rarest Disorders (1 of 4 Known Cases)
Kuba has a rare genetic disorder of which there are only 4 known cases in the world. He and his family are learning to live with the uncertainty that comes with such a rare diagnosis. They find comfort in knowing that although Kuba's future is unknown, he will be writing his own story.
https://www.patreon.com/SBSK
Видео A Kid with One of the World's Rarest Disorders (1 of 4 Known Cases) канала Special Books by Special Kids
https://www.patreon.com/SBSK
Видео A Kid with One of the World's Rarest Disorders (1 of 4 Known Cases) канала Special Books by Special Kids
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