Reacting to Ehlers-Danlos TikToks

In this video, I react to TikTok videos about Ehlers-Danlos Syndrome (EDS)! If you don't know, I have hypermobile EDS and postural orthostatic tachycardia syndrome (POTS), and I'm currently doing research on cEDS and applying to masters programs in genetic counseling!

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My Ehlers-Danlos Syndrome Story: https://www.youtube.com/watch?v=zYt9jAO0WyQ
My knee surgery: https://www.youtube.com/watch?v=OmqOchgtdh8
The types of pain EDS causes me: https://www.youtube.com/watch?v=VkixrpRbTn0
Differences between EDS, HSD, Hypermobility: https://www.youtube.com/watch?v=nTAffLj-2cI
How to get a doctor to listen to you: https://www.youtube.com/watch?v=km17oL6i94s

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WHAT’S EHLERS-DANLOS SYNDROME?
EDS is a genetic connective tissue disorder caused by a mutation in a gene that codes for collagen, an enzyme involved in collagen synthesis, or another extracellular matrix protein. EDS results in connective tissue that is abnormally weak, fragile, and stretchy. Connective tissue is found in all parts of the body, including your organs, ligaments, and joints. As a result, people with EDS can be affected in all of these areas, as well as more. The most common symptoms and co-morbidities include pain, dysautonomia, dislocations, GI tract dysmotility, severe joint instability, and many more. The disorder is somewhat rare, estimated to affect around 1 in every 5,000 people. However, it's speculated by many to not be as rare as we once believed.

MORE INFO ABOUT EDS:
https://www.ehlers-danlos.com/eds-types/
https://bit.ly/2N95xTE
MORE INFO ABOUT POTS:
https://www.potsuk.org/what_is_pots2
https://cle.clinic/2p1lByR
MORE INFO ABOUT GASTROPARESIS:
https://mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
https://bit.ly/2MLUYXI

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Видео Reacting to Ehlers-Danlos TikToks канала Izzy Kornblau