Jaquie's Passing

Our new designs: https://teespring.com/stores/izzy-and-jaquie
***20% will go to Dysautonomia International, and the rest of the money will go to Judd/Jaquie's family. I'm not keeping any of it. P.s. I kept mixing up my days. To clarify, she passed away on April 29th at around 12:50am.

If you don't know Jaquie, she was another amazing YouTuber with EDS, POTS, Gastroparesis, MCAS, Mitochondrial Disease, and a host of other conditions. She was the best self-advocate I knew, and she raised so much awareness for many diseases and people with disabilities. Over the past year, our friendship grew immensely, and Jaquie became one of my absolute best friends. I can't explain the sadness of her family, friends, followers, and I. She was so special, and I'm ecstatic that her legacy will live on through her YouTube channel, her friends, family, and all of the people she impacted with her channel.
NEW TO MY CHANNEL? START HERE!
My Ehlers-Danlos Syndrome Story: https://www.youtube.com/watch?v=zYt9jAO0WyQ
My knee surgery: https://www.youtube.com/watch?v=OmqOchgtdh8
The types of pain EDS causes me: https://www.youtube.com/watch?v=VkixrpRbTn0
Differences between EDS, HSD, Hypermobility: https://www.youtube.com/watch?v=nTAffLj-2cI
How to get a doctor to listen to you: https://www.youtube.com/watch?v=km17oL6i94s

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WANT TO HELP CAPTION MY VIDEOS?
Please go to my video page https://bit.ly/2p1lzqJ and click on a video that DOESN’T say CC under the view count. Once watching the video, click those three dots just below the right side of the video and click “add transcripts.” From there you can add them! Thank you so much to everyone who helps!!!!!!!!

WHAT’S EHLERS-DANLOS SYNDROME?
EDS is a genetic connective tissue disorder that causes certain mutations to aspects or types of connective tissues and results in connective tissue that is abnormally weak, fragile, and stretchy. Connective tissue is found in all parts of the body, including your organs, ligaments, and joints. As a result, people with EDS can be affected in all of these areas, as well as more. The most common symptoms and co-morbidities include pain, dysautonomia, dislocations, GI tract dysmotility, severe joint instability, and many more. The disorder is somewhat rare, estimated to affect around 1 in every 5,000 people. However, it's speculated by many to not be as rare as we once believed.

MORE INFO ABOUT EDS:
https://www.ehlers-danlos.com/eds-types/
https://bit.ly/2N95xTE

MORE INFO ABOUT POTS:
https://www.potsuk.org/what_is_pots2
https://cle.clinic/2p1lByR

MORE INFO ABOUT GASTROPARESIS:
https://mayocl.in/2BRQTuR

MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
https://bit.ly/2MLUYXI

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Captions were generously provided by Accessibility by Abby. Abby works to caption videos to make them more accessible. Please consider checking her out, liking her facebook page, or even donating a bit to her cause!
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Видео Jaquie's Passing канала Izzy Kornblau