The Boy Whose Body is Growing too Fast for his Bones (Marfan Syndrome)

Steven is diagnosed with Marfan and Beals syndrome. As a result his body is growing faster than his frame can support. At 13 years old he is 7 feet tall, blind and unable to walk.

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Видео The Boy Whose Body is Growing too Fast for his Bones (Marfan Syndrome) канала Special Books by Special Kids